Source: https://tendernation.io/opportunities/01a13caf-1743-739a-a77c-4c3d569f129c/public-standing-group-newborn-genomes-programme

closed GB open procedure Suitable for SMEs

# Public Standing Group: Newborn Genomes Programme

[Genomics England](https://tendernation.io/buyers/genomics-england)

Estimated value

£100,000

Published

17 Nov 2023

Deadline

Closed

5 Dec 2023

## Who can bid

- Buyer says suitable for SMEs

    The buyer ticked “suitable for SMEs” on the notice. Anyone can still bid.
- Buyer says suitable for VCSEs

    The buyer ticked “suitable for voluntary, community and social enterprises” on the notice.
- Small contract value

    Valued under £135,018 including VAT, the lowest Procurement Act threshold for goods and services.
- Open procedure

    Anyone can submit a full tender; there is no shortlisting stage.

[More contracts for small businesses and VCSEs](https://tendernation.io/opportunities/for-small-businesses)

## About this tender

This procurement focuses on the facilitation and management of a group of members of the public drawn from previous dialogues to deliberate on:

The implications of storing a baby's genome over their lifetime

Other issues, as they arise, in the delivery of the Generation Study - particularly those which would benefit from public deliberation

The group will need to run for a period of one year and examples of the issues that might be deliberated on include:

- Expectations of genomics over a babies' lifetime: exploring acceptable uses
- Involving young people as they grow up: navigating consent and assent
- Disclosing genomic findings over a person's lifetime: how, when, why, who?
- Relationships between genomic and wider health data
- Health records and the incorporation of genomic data
- Clinical access to genomic data: exploring the boundaries
- Genomic futures: newborn screening implications for the future of prenatal testing
- Reanalysing genomic data: exploring parameters

Additional information:

Please register on the e-tendering portal (Bravo) on the link provided. Once registered, you can find the opportunity under project title Public Standing Group on Ethics or the project reference "project\_868".

## CPV classification

Research and development services and related consultancy services

Source

Contracts Finder (UK)

[View official notice](https://www.contractsfinder.service.gov.uk/notice/1dfd7cd5-579a-4be5-a971-d173e6797610)

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